Swedish registry for cognitive/dementia disorders, SveDem
The Swedish Dementia Registry, SveDem, is a national quality registry on dementia disorders. SveDem is financed by the Swedish Association of Local Authorities and Regions. Uppsala Clinical Research Center is responsible for the development of the database online and its support.
The aim of the registry is to improve quality of diagnostics, treatment and care of patients with dementia disorders.
The number of patients suffering from dementia is increasing, mainly due to the increased number of the elderly. In Sweden, 150000 individuals suffer from dementia and 2/3 of them have Alzheimer´s disease (AD). To achieve a dementia care of similar and high quality in the whole country, the national quality registry for patients with dementia disorders, SveDem, was initiated.
SveDem started in May 2007. The aim is a registry with national coverage. Patients newly diagnosed with a dementia disorder are registered and followed-up yearly. Age, gender, heredity, BMI, MMSE scores, diagnoses, dementia work-up investigations, medical treatment, support from community, time from referral to diagnosis are examples of parameters registered in the webbased registry.
Each participating unit obtains continuous descriptive statistics (updated every day) from its own registrations online and can compare them with regional and national data. A report from SveDem is published yearly for the profession, political and administrative decision-makers.
SveDem will give important and new knowledge about dementia care today, but also reflect changes in care. New knowledge of the more rare dementia disorders will be obtained. Time to institutional living will be one parameter that can reflect changes in care. Results from each unit can at all times be compared with regional and national data, which is an important tool for improving the quality of care at the local level.
The registry is continuously growing. 94 644 patients are now registered and the registry have 92 602 baseline registrations and 85 762 follow-up registrations. (2020-08-07)
100% of all memory clinics in Sweden are currently participating in SveDem.
Phone: +468585 897 83
Mobilphone: +46700 85 66 78
Maria Eriksdotter, MD, prof, Geriatric clinic, Karolinska University Hospital, Stockholm and Karolinska Institutet, chair.
Kerstin Kåwe, occupational therapist, Karlstad hospital
Lena Kilander, MD, prof, Dept of Geriatrics, Uppsala University Hospital, Uppsala
Ulla-Britt Mattsson, MD, Neuropsychiatric clinic, Sahlgrenska University Hospital, Gothenburg
Katarina Nägga, MD, Neuropsychiatric clinic, Skåne University Hospital, Malmö
Anne Sjöblom, RN, Activity Developer, Västmanland County, Västerås
Helle Wijk, RN, prof, Sahlgrenska Academy, Sahlgrenska Univerisity Hospital, Gothenburg
Sibylle Mayer, MD, Geriatric clinic, Gävle Hospital
Hugo Löwheim, MD, Assoc prof, Norrland University Hospital, Umeå
Anna Segernäs Kvitting, MD, Primary Care Center, Linköping
Annika Nilsson, RN, Medically responsible nurse, The municipality of Kil
Dorota Religa, MD, prof, Geriatric clinic, Karolinska University Hospital, Stockholm and Karolinska Institutet
Karin Westling, national coordinator, Karolinska University Hospital Stockholm