Publikationer/Presentationer med anknytning till Swedcon-data

År Publikation Typ av publikation  
2022 Lewis MJ, Malm T, Hallbergson A, Nilsson F, Johansson Ramgren J, Tran K, Liuba P. Long Term Follow Up of Right Ventricle to Pulmonary Artery Biologic Valved Conduits Used in Pediatric Congenital Heart Surgery . Pediatric Cardiology 2022 Published online: 3 July 2022. Publikation
2021 Edvinsson B, Thilén U, Nielsen N-E, Christersson C, Dellborg M, Eriksson P, Hlebowicz J. Does persistent (patenet) foramen ovale closure reducethe risk of recurrent decompression sickness in scuba divers? Diving Hyperb Med 2021;51(1):63-67. Doi.10.28920/dhm51.1.63-67 Publikation
2021 Bay A, Lämås K, Berghammer M, Sandberg C, Johansson B. Enablers and barriers for being physically active: experiencesfrpm adults with congenital heart disease. Eur J Cardiovasc Nurs. 2021 Mar 1;20(2):276–284. doi: 10.1177/1474515120963314 Publikation
2021 Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10;19(1):53. doi: 10.1186/s12955-021-01696-x.PMID: 33568120 Publikation
2021 Fazlinović S, Wallinder A, Dellborg M, Furenäs E, Eriksson P, Synnergren M, Lidén H. Outcome and survival after open heart surgery for adults with congenital heart disease - a single center experience. Scand Cardiovasc J. 2021 Dec;55(6):345-353. doi: 10.1080/14017431.2021.1983639. Epub 2021 Oct 21. PMID: 34672849. Publikation
2021 Kröönström LA, Eriksson P, Johansson L, Zetterström AK, Giang KW, Cider Å, Dellborg M. Post-operative musculoskeletal outcomes in patients with coarctation of the aorta following different surgical approaches. Int J Cardiol. 2021 Mar 15;327:80-85. doi: 10.1016/j.ijcard.2020.11.018. Epub 2020 Nov 10. PMID: 33186668. Publikation
2021 Sandberg C, Crenshaw AG, Christersson C, Hlebowicz J, Thilén U, Johansson B. Despite reductions in muscle mass and muscle strength in adults with CHD, the muscle strength per muscle mass relationship does not differ from controls. Cardiol Young. 2021 May;31(5):792-798. doi: 10.1017/S1047951120004709. Epub 2021 Jan 18.PMID: 33455600 Publikation
2021 Sandberg C, Crenshaw AG, Elçadi GH, Christersson C, Hlebowicz J, Thilén U, Johansson B. Patients with complex congenital heart disease have slower calf muscle oxygenation during exercise (accepterat för publikation i International journal of cardiology congenital heart disease) Publikation
2021 Sandström A, Rinnström D, Kesek M, Thilén U, Dellborg M, Sörensson P, Nielsen NE, Christersson C, Johansson B. Implantable cardiac devices in adult patients with repaired tetralogy of Fallot. Scand Cardiovasc J. 2021 Feb;55(1):22-28. doi: 10.1080/14017431.2020.1792973. Epub 2020 Jul 16.PMID: 32672076 Publikation
2021 Sandström A, Wikner A, Rinnström D, Sandberg C, Christersson C, Dellborg M, Nielsen N-E, Sörensson P, Thilén U and Johansson B. Exercise capacity in adult patients with tetralogy of Fallot (accepterat för publikation i International Journal of Cardiology Congenital Heart Disease). Publikation
2021 Skogby S, Goossens E, Johansson B, Moons P, Bratt E-L. A qualitative study of facilitators and barriers for continued follow-up care as experienced by young people with congenital heart disease in Sweden. BMJ Open 2021:11(10):e049556 Publikation
2021 Johansson K, Johansson B, Sandberg C. Bone quality assessed using pqCT in adults with complex congenital heart disease (International Journal of Cardiology Congenital Heart Disease).  Publikation
2021 Skogby S, Bratt E-L, Johansson B, Moons P, Goossens E. Discontinuation of follow-up care for young persons with complex chronic conditions: conceptual definitions and operational components (accepterat för publikation i BMC Health Services Research) Publikation
2021 Moons P, Luyckx K, _ _ _ (#17) Johansson B, _ _ _ Apers S, Kovacs AH. Patient-reported outcomes in adults with congenital heart disease who are recovering after hospitalization: An international study Am J Cardiol 2021 Publikation
2021 Leibold A, Eichler E, Chung S, Moons P, Kovacs AH, Luyckx K et al. Pain in Adults with Congenital Heart Disease - An International Perspective (accepterat för publikation i International Journal of Cardiology Congenital Heart Disease) Publikation
2021 Manhem S, Hanséus K, Berggren H, Ekman-Joelsson BM. Survival With Respect to Morphology in Pulmonary Atresia and Intact Ventricular Septum in Sweden. World J Pediatr Congenit Heart Surg. 2021 Jan;12(1):27-34. doi: 10.1177/2150135120958641.PMID: 33407024 Publikation
2021 Dahlqvist JA, Wiklund U, Karlsson M, Hanséus K, Strömvall Larsson E, Johansson Ramgren J, Berggren H, Rydberg A. Changes in Heart Rate and Heart Rate Variability During Surgical Stages to Completed Fontan Circulation<a href="about:blank">. Pediatr Cardiol. 2021 Jun;42(5):1162-1169. doi: 10.1007/s00246-021-02595-0. Epub 2021 Apr 10. PMID: 33837840 Publikation
2021 Fricke K, Liuba P, Weisman CG. Fetal Echocardiographic Dimension Indices: Important Predictors of Postnatal Coarctation. Pediatr Cardiol. 2021, volume 42, pages 517–525 Publikation
2021 Skovdahl P, Kjellberg Olofsson C, Sunnegårdh J, Fridolfsson J, Börjesson M, Buratti S, Arvidsson D. Children and Adolescents Treated for Valvular Aortic Stenosis Have Different Physical Activity Patterns Compared to Healthy Controls: A Methodological Study in a National Cohort. Pediatr Cardiol. 2021 Apr;42(4):774-783. doi: 10.1007/s00246-021-02540-1. Epub 2021 Feb 1. PMID: 33523288 Free PMC article. Publikation
2021 Ternrud L, Hlebowicz J, Sandberg C, Johansson B, Sparv D. Prevalence of fatigue in adults with congenital heart disease. Cardiol Young. 2021 Oct 29:1-8. doi:10.1017/S1047951121004297. Online ahead of print.PMID: 34714224 Publikation
2021 Rinnström D, Dellborg M, Thilén U, Sörensson P, Nielsen NE, Christersson C, Johansson B. High prevalence of ascending aortic dilation in adults with repaird coarctation of the aorta. Cardiol Young. 2021 Jun;31(6):992-997. doi: 10.1017/S1047951121000111. Epub 2021 Feb 18.PMID: 33597051 Publikation
2020 Tanghöj G, Liuba P, Sjoberg G, Naumburg E. Risk factors for adverse events within one year after atrial septal closure in children. Cardiology in the young 2020;30 (vol 3):303-12 ISSN 1047-9511. Publikation
2020 Tanghöj G, Liuba P, Sjoberg G, Naumburg E. Predictors of the need for an atrial septal closure at very young age. Frontiers in Cardiovascular Medicine 2020; vol 6: artikelnr 185. E-ISSN 2297-055X. Publikation
2020 Tanghöj G, Lindam A, Liuba P, Sjoberg G et al. Atrial septal defect in children: The incidence and risk factors for diagnosis. Congenital Heart Disease 2020;15 (vol  5):287-9. ISSN 1747-0799X, E-ISSN 1747-0803. Publikation
2020 Saarijärvi M, Wallin L, Bratt EL. Process evaluation of complex cardiovascular interventions. How to interpret the results of my trial?  Eur J Cardiovasc Nurs. 2020 Mar;19(3):269-274. doi: 10.1177/1474515120906561. Publikation
2020 Saarijärvi M, Wallin L, Moons P, Gyllensten H, Bratt EL. Factors affecting adolescents' participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project. BMC Med Res Methodol. 2020 Aug 3;20(1):205. doi: 10.1186/s12874-020-01088-7.PMID: 32746862 Publikation
2020 Kjellberg Olofsson C, Hanseus K, Johansson Ramgren J, Johansson Synnergren M, Sunnegårdh J. A national study of the outcome after treatment of critical aortic stenosis in the neonat. Cardiol Young. 2020 Sep;30(9):1321-1327 Publikation
2020 Wiezell E, F Gudnason J, Synnergren M, Sunnegårdh J. Outcome after surgery for pulmonary atresia with ventricular septal defect, a long-term follow-up study.  J.Acta Paediatr. 2020 Dec 22. doi: 10.1111/apa.15732. Online ahead of print.PMID: 33351279 Publikation
2020 Skogby S, Moons P, Johansson B, Sunnegårdh J, Christersson C, Nagy E, Winberg P, Hanséus K, Trzebiatowska-Krzynska A, Fadl S, Fernlund E, Kazamia K, Rydberg A, Zühlke L, Goossens E, Bratt EL. Outpatient volumes and medical resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart disease. Int J Cardiol. 2020 Jul 1;310:51-57. Publikation
2020 Öhman A, El-Segaier M, Bergman G, Hanséus K et al: Transplantation-free survival after Norwood surgery for hypoplastic left heart syndrome with aortic atresia: A Swedish cohort study. Cardiology in the Young 2020. doi:10.1017/S1047951119003263 Publikation
2020 Svensson B, Idvall E, Nilsson F, Liuba P. Health-Related  Quality of Life in Children With Earlier Surgical Repair for Right Ventricular Outflow Tract Anomalies and the Agreement Between Children and Their Parents. Front. Cardiovasc. Med. 7:66. doi: 10.3389/fcvm.2020.00066 Publikation
2020 Skoglund K, Heimdahl J, Mandalenakis Z, Thilén U, Johansson B, Christersson C, Sörensson P, Dellborg M. Effect of medical treatment in patients with systemic right ventricle. Scand Card Vasc J 2020. <a href="https://doi.org/10.1080/14017431.2020.1751266"><a href="https://doi.org/10.1080/14017431.2020.1751266">https://doi.org/10.1080/14017431.2020.1751266 (Epub ahead of print) Publikation
2020 Moons P M, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman M, Wang JK, Jackson JL, Khairy P, Cook S, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie A, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD). Sense of coherence in adults with congenital heart disease in 15 countries: predictors and relationship with quality of life European Journal of Cardiovascular Nursing Eur J Cardiovasc Nurs. 2020 Jun 11:1474515120930496. Publikation
2020 Camilla Sandberg, Karna Johansson, Christina Christersson, Joanna Hlebowicz, Ulf Thilén, Bengt Johansson. Low bone mineral density in adults with complex congenital heart disease (accepterat för publikation i International Journal of Cardiology) Publikation
2020 Anette Sandström, Daniel Rinnström, Peder Sörensson, Ulf Thilén, Christina Christersson, Mikael Dellborg, Niels-Erik Nielsen and Bengt Johansson.  Implantable cardiac devices in patients with repaired Tetralogy of Fallot (accepterat för publikation i Scandinavian Cardiovascular Journal) Publikation
2020 Benjamin Casteigt, Michelle Samuel, Laurence Laplante, Azadeh Shohoudi, Silke Apers, Adrienne H. Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A. Sluman, Chun-Wei Lu, Jamie L. Jackson, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, MD, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M. Fernandes, Kamila White, Edward Callus, Shelby Kutty, Judith Brouillette, Philip Moons, Paul Khairy, Atrial Arrhythmias and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International Study (accepterat för publikation i Heart Rythm) Publikation
2020 Skoglund K, Heimdahl J, Mandalenakis Z, Thilén U, Johansson B, Mattson E, Christersson C, Dellborg M. Effect of medical treatment in patients with systemic right ventricle with or without heart failure Scandinavian Cardiovascular Journal 2020 Scand Cardiovasc J. 2020 Oct;54(5):300-305. doi: 10.1080/14017431.2020.1751266 Publikation
2019 Burström Å, Acuna Mora M, Sparud-Lundin C, Ryberg A, Hanséus K, Moons P, Bratt EL. Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for Improvement. 53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. Publicerade abstacts
2019 Bratt EL, Acuna Mora M, Saarijärvi M, Brorsson AL, Skogby S, Sparud-Lundin C. Person-centered and Empowering Care for Adolescents with Chronic Conditions during Transition to Adulthood - workshop. SAHM 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington Marriott Wardman Park Washington, DC, USA. Publicerade abstacts
2019 Skogby S, Bratt EL, Johansson, B, Moons P, Goossens E. Urgency for Clarification of Concepts and Definitions related to Discontinuation of Follow-Up Care for Young People with Complex Chronic Conditions. 3rd CARE4 – International Scientific Nursing and Midwifery Congress 2019. 4-6 Februari 2019. Leuven, Belgium. Publicerade abstacts
2019 tröm Å, Acuña Mora M, Öjmyr-Joelsson M, Sparud-Lundin C, Rydberg A, Hanseus K, Frenckner B, Nisell M, Moons P, Bratt EL. Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult Care. Journal of Advanced Nursing. 2019 Feb;75(2):380-387. doi: 10.1111/jan.13852. Publikation
2019 Burström Å, Acuña Mora M, Öjmyr-Joelsson M, Sparud-Lundin C, Rydberg A, Hanseus K, Frenckner B, Nisell M, Moons P, Bratt EL. Ready for transfer to adult care? - a triadic evaluation of transition readiness in adolescents with congenital heart disease and their parents. Journal of Family Nursing. 2019 Aug;25(3):447-468. doi: 10.1177/1074840719864255. Publikation
2019 Acuña Mora M, Sparud-Lundin C, Burström Å, Hanseus Å, Rydberg A, Moons P, Bratt EL. Patient empowerment and its correlates in young persons with congenital heart disease. Eur J of Cardiovasc Nurs 2019, Vol. 18(5) 389–398. doi: 10.1177/1474515119835434 Publikation
2019 Saarijärvi M, Moons P, Wallin L, Gyllensten H, Bratt EL. Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-methods process evaluation study (the STEPSTONES project). BMJ Open. 2019. Aug 2;9(8):e028229. doi: 10.1136/bmjopen-2018-028229. Publikation
2019 Alenius JA, Wiklund U, Karlsson,M, Hanséus K et al: Sinus node dysfunction in patients with Fontan circulation: could heart rate variability be a predictor for pacemaker implantation? Pediatric Cardiology (2019) 40:685-693 https://doi.org/10.1007/s00246-019-02092-5 Publikation
2019 Öhman A, El-Segaier M, Bergman G, Hanséus K et al: Changing Epidemiology of Hypoplastic Left Heart Syndrome: Results of a National Swedish Cohort Study. J Am Heart Assoc. 2019;8:e0 10893. Doi:10.1161/JAHA.118.010893. Publikation
2019 <span style="font-family: Calibri; font-size: medium;">Dahlqvist JA, Sunnegårdh J, Hanséus K, Strömvall Larsson,E, Nygren A, Dahlén M, Berggren H, Johansson Ramgren J, Wiklnd U, Rydberg A. Pacemaker treatment after Fontan Surgery – a Swedish national study. Publicerad i avhandlingen Heart rate variability and pacemaker treatment in children with Fontan circulation (Dahlqvist JA, Umeå Universitet 2019) Publikation
2019 Burström Å, Acuña Mora M, Sparud-Lundin C, Rydberg A  Hanseus K, Moons P, Bratt EL.  Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart disease. SAHM 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington Marriott Wardman Park Washington, DC, USA. Publicerade abstacts
2019 Bratt EL, Saarijärvi M, Acuna Mora M, Sparud-Lundin C, Moons P. Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES project. Forte talks 26-27 mars 2019. Stockholm. <a href="about:blank">www.fortetalks.se Övrigt
2019 Saarijärvi M, Wallin L, Gyllensten H, Moons P, Bratt EL. Processutvärdering av ett personcentrerat övergångsprogram för ungdomar med medfödda hjärtfel i övergång till vuxenlivet – STEPSTONES-projektet. Centrum för personcentrerad vård (GPCC) 10-årsjubileumskonferens 6-7 feb 2020, Göteborg. Övrigt
2019 Ternrud Linda. ”Fatigue hos patienter med komplexa medfödda hjärtfel”. Magisteruppsats 2019 Övrigt
2019 Dahlqvist JA, Wiklund U, Karlsson M, Hanséus K et al: Sinus node dysfunction in patients with Fontan circulation: could heart rate variability be a predictor for pacemaker implantation? Pediatric Cardiology (2019) 40:685-693. doi.org/10.1007/s00246-019-02092-5. Publikation
2019 Alenius Dahlqvist J, Wiklund U, Karlsson M, Hanséus K et al: Sinus node dysfunction in patients with Fontan circulation: could heart rate variability be a predictor for paceemaker implantation? Pediatric Cardiology (2019) 40:685-693 doi:org/10.1007/s00246-019-02092-5. Publikation
2018 Sandtröm A, Sandberg A, Rinnström D, Engström G, Dellborg M, Thilén U, Sörensson P, Nielsen N-E, Christersson C, Johansson B. Factors associated with health-related quality of Life among adults with tetralogy of Fallot, Open Heart Feb 2019, 6 (1) e000932; DOI: 10.1136/openhrt-2018-000932 Publikation
2018 Bay, A., Lämås, K., Berghammer, M., Sandberg, C. & Johansson, B. It's like balancing on a slackline-A description of how adults with congenital heart disease describe themselves in relation to physical activity. Journal of clinical nursing <b>27</b>, 3131-3138, doi:10.1111/jocn.14507 (2018). Publikation
2018 Sandberg C, Hedström M, Wadell K, Dellborg M, Ahnfelt A, Zetterström A-K, Amanda Ö, Johansson B. Home‐based interval training increases endurance capacity in adults with complex congenital heart disease Congenital Heart Disease, Volume13, Issue2, March/April 2018, Pages 254-26 Publikation
2018 Skogby S, Moons P, Johansson B, Dellborg M, Christersson C, Nady E Winberg P, Thilen U,  Hanséus K, Krzynska A, Fadl S, Fernlund E, Kazamia K, Rydberg A, Sunnegårdh J, Goossens E, Bratt E-L. Successful transfer to adult care: A nationwide study in patients with complex congenital heart lesions in Sweden. Cardiology in the Young, Volume 28, 2018-05, S96 - S97 Publicerade abstacts
2018 Berghammer M,  Johansson B,  Mattson E,  Moons P,  Dellborg M  APPROACH-IS. Exploration of disagreement between the patient's self reported limitations and limitations assessed by caregivers in adults with congenital heart disease European Heart Journal, Volume 39, Issue suppl_1, 1 August 2018, ehy565.2406, <a href="https://doi.org/10.1093/eurheartj/ehy565.2406" target="_blank" rel="noopener">https://doi.org/10.1093/eurheartj/ehy565.2406 Publicerade abstacts
2018 Papageorgiou C. Är blåsljud upptäckt vid rutinbarnläkarundersökning på BB en prediktor för allvarlig hjärtsjukdom? Poster vid Barnveckan 2018. Övrigt
2018 Dellborg M, Skoglund K, Heimdahl J, Thilen U, Johansson B, Christersson C, Mattsson E, Eriksson P. Effects of advanced heart failure treatment on mortality in patients with a systemic right ventricle. JACC, Volume 71, Issue 11, Supplement, 10–12 March 2018, Page A532 Övrigt
2018 Dellborg M, Heimdahl J, Skoglund K, Johansson B, Christersson C, Mattsson E, Eriksson P, Thilen U. Effect of advanced heart failure treatment on symptoms in patients with a systemic right ventricle. JACC, Volume 71, Issue 11, Supplement, 10–12 March 2018, Page A530 Övrigt
2017 Svensson B, Idvall E, Nilsson F, Liuba P. Health-related quality of life in children with surgery for CHD: a study from the Swedish National Registry for Congenital Heart Disease. Cardiology in the Young (2017), 27, 333-343 doi:10.1017/S1047951116000585 Publikation
2017 <a href="https://www.ncbi.nlm.nih.gov/pubmed/?term=Naumburg E[Author]&cauthor=true&cauthor_uid=27801982" >Naumburg E Publikation
2017 Skoglund K, Svensson G, Thilén U, Dellborg M, Eriksson P. RV to PA conduits; impact of transcatheter pulmonary valve replacement in adults conduits - a national register study. Scand Cardiovasc J. 2017 Jun;51(3):153-158. doi: 10.1080/14017431.2017.1291988. Epub 2017 Feb 15. PMID: 28276717 Publikation
2017 Bodell A, Björkhem G, Thilén U, Naumburg E. National quality register of congenital heart diseases - Can we trust the data? Journal of Congenital Cardiology 2017 1:11 Publikation
2017 Rinnström D, Dellborg M, Thilén U, Sörensson P, Nielsen NE, Christersson C, Ugander M, Johansson B. Poor blood pressure control in adults with repaired coarctation of the aorta and hypertension; a register-based study of associated factors. Cardiol Young. 2017 Jul 13:1-8. doi: 10.1017/S1047951117001020. [Epub ahead of print. Publikation
2016 Kempny A, Hjortshøj CS, Gu H, Li W, Opotowsky AR, Landzberg M, Jensen AS, Søndergaard L, Estensen ME, Thilén U, Budts W, Mulder BJ, Blok IM, Tomkiewicz-Pajak L, Szostek K, D'Alto M, Scognamiglio G, Prokšelj K, Diller GP, Dimopoulos K, Wort SJ, Gatzoulis MA. Predictors of Death in Contemporary Adult Patients with Eisenmenger Syndrome: A Multicentre Study. Circulation. 2016 Dec 15. pii: CIRCULATIONAHA.116.023033. [Epub ahead of print) Publikation
2016 Berglund E, Johansson B, Dellborg M, Sörensson P, Christersson C, Nielsen N-E, Rinnström D, Thilén U. High incidence of infective endocarditis in adults with congenital ventricular septal defect. Heart. 2016 Jul 21. [Epub ahead of print] Publikation
2016 Thilén M, Christersson C, Dellborg M, Mattson E, Trzebiatowska-Krzynska A, Thilén U. Atrial septal defect device closure in the elderly (≥ 65 years). A worthwhile procedure. International Journal of Cardiology 2016;218:25–30 Publikation
2016 Berghammer MC, Mattsson E, Johansson B, Moons P, Dellborg M. Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study. Cardiol Young. 2016 May 11:1-8 Publikation
2016 Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Romfh AW, White K, Callus E, Kutty S, Fieuws S, Moons P; APPROACH-IS consortium and ISACHD. Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics. J Am Coll Cardiol. 2016 May 17;67(19):2237-45. Publikation
2016 Sandberg C, Pomeroy J, Thilén U, Gradmark A, Wadell K, Johansson B. Habitual Physical Activity in Adults with Congenital Heart Disease Compared to Age and Gender Matched Controls. Canadian Journal of Cardiology. 2016 32(4):547-553 Publikation
2016 Rinnström D, Thilén U, Dellborg M, Johansson B. Left ventricular hypertrophy in adults with previous repair of coarctation of the aorta; association with systolic blood pressure in the high normal range. International Journal of Cardiology 2016;218:59-64 Publikation
2016 Rinnström D, Dellborg M, Thilén U, Sörensson P, Nielsen NE, Christersson C, Johansson B. Hypertension in adults with repaired coarctation of the aorta. Am Heart J. 2016;181:10-15 Publikation
2016 Astengo M, Berntsson C, Johnsson ÅA, Eriksson P, Dellborg M. Ability of noninvasive criteria to predict hemodynamically significant aortic obstruction in adults with coarctation of the aorta. Congenit Heart Dis. 2016 Oct 25. doi: 10.1111/chd.12424. [Epub ahead of print] PubMed PMID: 27779371. Publikation
2016 Dellborg M, Eriksson P. Randomized trials of closure of persistent foramen ovale (PFO) vs medical therapy for patients with cryptogenic stroke - Effect of lost-to-follow-up and withdrawal of consent. Int J Cardiol. 2016 Mar 15;207:308-9. doi: 10.1016/j.ijcard.2016.01.185. PubMed PMID: 26814634. Publikation
2016 Bartfai, E: Prenatal detection of congenital heart defects in Malmö, Sweden (Prenatal detektion av medfödda hjärtmissbildningar i Malmö, Sverige). Läkarprogrammet, Malmö. Masters's thesis, 2016. Övrigt
2016 Bodell Amanda. Validation study of national based quality register for congenital heart diseases (SWEDCON). Läkarprogrammet Umeå Universitet Höstterminen 2016, presenterad januari 2017. Övrigt
2016 Bay A, Sandberg C, Thilén U, Wadell K, Johansson B. Exercise self-efficacy in adults with congenital heart disease (Abstract - Poster). XVIII Kardiovaskulära vårmötet, Göteborg 2016-04-27/29 Övrigt
2016 <p class="Default">Thilén U. Siste nytt om transpositjoner. Kardiologiskt höstmöte, Oslo, Norway, 2016-10-28 Övrigt
2016 Thilén U Erfaringar fra SWEDCON. Kardiologiskt höstmöte, Oslo, Norway, 2016-10-28 Övrigt
2015 Apers S, Kovacs A, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P, on behalf of the APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease. Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart Disease - International Study (APPROACH-IS): Rationale, design, and methods. Int J Cardiol. 2015 Jan 20;179:334-42 Publikation
2015 Sandberg C , Rinnström D , Dellborg M , Thilén U , Sörensson P , Nielsen NE , Christersson C , Wadell K , Johansson B.Height, weight and body mass index in adults with congenital heart disease. International Journal of Cardiology 2015, 187:219-226 Publikation
2015 Sandberg C, Engström KG, Dellborg M, Thilén U, Wadell K, Johansson B. The level of physical exercise is associated with self-reported health status (EQ-5D) in adults with congenital heart disease. Eur J Prev Cardiol. 2015 Feb;22(2):240-8. Publikation
2015 Sandberg C, Thilén U, Wadell K, Johansson B. Adults with complex congenital heart disease have impaired skeletal muscle function and reduced confidence in performing exercise training. Eur J Prev Cardiol. 2015 Dec;22(12):1523-3 Publikation
2015 Skoglund K , Berghammer M , Eriksson P , Svensson G , Thilén U , Dellborg M Decline in self-reported health (EQ-5D) over time after surgical reconstruction of the right ventricular outflow tract: a longitudinal cohort study of 103 patients. Congenital Heart Disease [2015, 10(2):E54-9] Publikation
2015 Skoglund K, Eriksson P, Svensson G, Dellborg M. Homograft reconstruction of the right ventricular outflow tract in adults with congenital heart disease: a systematic review. Interact Cardiovasc Thorac Surg. 2015 Sep 27. pii: ivv264 Publikation
2015 Mirzada N, Ladenvall P, Hansson PO, Eriksson P, Dellborg M. Recurrent stroke in patients with patent foramen ovale: An observational prospective study of percutaneous closure of PFO versus non-closure. Int J Cardiol. 2015;195:293-9 Publikation
2015 Vejlstrup N, Sørensen K, Mattsson E, Thilén U, Kvidal P, Johansson B, Iversen K, Søndergaard L, Dellborg M, Eriksson P. Long-Term Outcome of Mustard/Senning Correction for Transposition of the Great Arteries in Sweden and Denmark. Circulation. 2015;132:633-8 Publikation
2015 Dellborg M, Björk A, Pirouzi Fard MN, Ambring A, Eriksson P, Svensson AM, Gudbjörnsdottir S. High mortality and morbidity among adults with congenital heart disease and type 2 diabetes. Scand Cardiovasc J. 2015;49:344-50 Publikation
2015 Ann Asp, Ewa-Lena Bratt, Ann-Cathrine Bramhagen. Transfer to adult care- experiences of young adults with congenital heart disease. Journal of Pediatric Nuring May-2015. Publikation
2015 Birgitta Svensson, Ewa Idvall, Petru Liuba. Health-related quality of life in children after surgery for congenital heart disease. AEPC kongress Prag 2015. Övrigt
2015 Thilén M, Christersson C, Dellborg M, Mattson E, Trzebiatowska-Krzynska A, Thilén U. Percutaneous closure of atrial septal defect in the old - It is worth it.<br />XVII Kardiovaskulärt vårmöte (Abstract 58), Örebro 2015-04-22/24. Övrigt
2015 Sandberg C, Rinnström D, Dellborg M, Thilen U, Sörensson P, Nielsen NE, Christersson C, Wadell K, Johansson B. Längd, Vikt och BMI hos vuxna med medfödda hjärtfel hos vuxna. XVII Kardiovaskulärt vårmöte (Abstract 56), Örebro 2015-04-22/24. Övrigt
2015 Thilén M, Christersson C, Dellborg M, Mattson E, Trzebiatowska-Krzynska A, Thilén U. Atrial septal defect device closure in the elderly – symptomatic benefits except for arrhythmia. ESC congress (Abstract P3611), London, UK 2015-08-30/09-02 Övrigt
2015 Berglund E, ThilenU, Dellborg M, ChristerssonC, SorenssonP, NielsenN-E, JohanssonB. High incidence of endocarditis in adults with congenital ventricular septal defect. ESC congress (Abstract P2655), London, UK 2015-08-30/09-02 Övrigt
2014 Skoglund K, Berghammer M, Eriksson P, Svensson G, Thilén U, Dellborg M. Decline in Self-reported Health (EQ-5D) over time after surgical reconstruction of the right ventricular outgflow tract.: A longitudinal cohort study of 103 patients. Congenit Heart Dis. 2014 Aug 17 [Epub ahead of print] Publikation
2014 Sandberg C, Thilén U, Wadell K, Johansson B. Adults with complex congenital heart disease have impaired skeletal muscle function and reduced confidence in performing exercise training.  Eur J Prev Cardiol. 2014 Jul 18 [Epub ahead of print]  Publikation
2014 Sandberg C, Thilén U, Wadell K, Johansson B. Vuxna med medfött hjärtfel har nedsatt skelettmuskelfunktion och lägre self-efficacy avseende fysisk träning jämfört med friska ålders- och könsmatchade kontroller (Poster-abstract). Svenska Kardiovaskulära Vårmötet 2104 05 07-09 Malmö Övrigt
2014 Rinnström D, Thilén U, Dellborg M, Johansson B. Arterial hypertension is common in adults with coarctation of the aorta (Poster-abstract). Svenska Kardiovaskulära Vårmötet 2104 05 07-09 Malmö Övrigt
2014 Sandberg C, Thilén U, Wadell K, Johansson B. Adults with complex congenital heart disease have impaired skeletal muscle function and lower confidence in performing exercise training compared to healthy age and gender matched controls. Poster 3279. ESC Congres Barcelona Augusti 2014 Övrigt
2014 Vejlstrup N, SorensenK, MattssonE,  Sondergaard<sup>  </sup>L, JohanssonB, ThilenU, KvidalP, Dellborg M, ErikssonP. Population-based study of long-term outcome of Mustard/Senning correction for transposition of the great arteries (TGA). Poster 3314. ESC Congres Barcelona Augusti 2014 Övrigt
2014 SandbergC, ThilenU, WadellK, GradmarkA, JohanssonB. Adults with congenital heart disease have lower habitual physical activity level compared to healthy age and gender matched controls. Poster 1352. ESC Congres Barcelona Augusti 2014 Övrigt
2013 Sandberg C, Thilén U, Wadell K et al. Complex adult congenital heart disease is associated with impaired skeletal muscle function. European Society of Cardiology, Congress 2013, Amsterdam 2013 08 31 – 09 04. Övrigt
2013 Johansson B, Engström G, Dellborg M et al. Functional class, symptoms, medications, arrhythmia, devices and quality of life in adults with congenital aortic valve disease. Data from the Swedish national registry of congenital heart disease (SWEDCON). European Society of Cardiology, Congress 2013, Amsterdam 2013 08 31 – 09 04. Övrigt
2013 Svensson B, Björkhem G, Idvall E. Self-reported health-related quality of life in children and adolescent with heart disease: A swedish registry study. 6th World Congress of Pediatric cardiology and cardiac surgery, Kapstaden, Sydafrika, februari 2013 Övrigt
2013 Svensson B, Björkhem G, Liuba P et al. Self-reported health-related quality of life in children and adolescent with heart disease. Nordisk barnkardiologisk kongress, Köpenhamn, Danmark 2013 09 19. Övrigt
2012 och äldre Sandberg C, Wadell K, Gradmark A et al. Physical activity and muscle function in adults with congenital heart disease. Svenska Kardiovaskulära vårmötet, Göteborg, 2013 04 17 - 19 Publikation
2012 och äldre Björkhem G. SWEDCON - The Swedish Registry of Congenital Heart Disease . Abstract. Psychosocial Care from Fetus to Adult Working Group, Biannual Meeting, Lake Balaton, Ungern, Mars 2011. Publicerade abstacts
2012 och äldre Björkhem G, Thilén U. Transition from pediatric cardiology to GUCH - information from the Swedish National Registry SWEDCON. Oral presentation at the 45th Annual Meeting of the Association for European Paediatric Cardiology. Cardiology in the Young 2011:21 (supplement 1):2. Publicerade abstacts
2012 och äldre Björkhem G, Thilén U. SWEDCON - The Swedish Registry of Congenital Heart Disease. Oral presentation at the 44th Annual Meeting of the Association for European Paediatric Cardiology. Cardiology in the Young 2010;20 (supplement 2):3. Publicerade abstacts
2012 och äldre Johansson, B, Gunnesson E, Hallén P, Dellborg M, Kronvall T, Kvidal P, Mattsson E, Nierlsen N-E, Engström KG, Thilén U. Outcome in adults with congenital aortic valve disease. Data from the Swedish registry on adult congenital heart disease. Scand Cardiovasc J 2010;58 (supplement):21. XII:e Svenska Kardiovaskulära vårmötet, Göteborg, Sverige 2010 04 21-23. Publicerade abstacts
2012 och äldre Johansson, B, Hallén P, Gunnesson E, Dellborg M, Kronvall T, Kvidal P, Mattsson E, Nierlsen N-E, Thilén U. Progression of transvalvular systolic gradients in adults with congenital aortic stenosis/bicuspid aortic valve with stenosis. Data from the Swedish registry on adult congenital heart disease. Scand Cardiovasc J 2010;58 (supplement):24. XII:e Svenska Kardiovaskulära vårmötet, Göteborg, Sverige 2010 04 21-23. Publicerade abstacts
2012 och äldre Paulsson K, Thilen U. Less than 8% pre valence of Hepatitis C infection after cardiac surgery for congenital heart disease when performed before blood donor screening. Risk seems lower than earlier reported. Scand Cardiovasc J 2008;56 (supplement): 113. X:e Svenska Kardiovaskulära vårmötet, Malmö, Sverige 08 04 23-25. Publicerade abstacts
2012 och äldre Thilén U, Paulsson K. High prevalence of Hepatitis C after cardiac surgery for congenital heart disease when performed before blood donor screening. Abstract-poster. Scand Cardiovasc J 2007;55 <br /> (supplement): 39. Svenska Cardiologföreningens vårmöte 2007 04 25 - 27, Göte borg, Sweden. Publicerade abstacts
2012 och äldre Svensson B, Björkhem G. Assessment of quality of life (QoL) in children with Heart disease in a national Registry. Abstract. Psychosocial Care from Fetus to Adult Working Group, Biannual Meeting, Lake Balaton, Ungern, Mars 2011. Övrigt
2012 och äldre Björkhem G. SWEDCON - the Swedish Registry of Congenital Heart Disease. The Seventh Annual Meeting of The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease , Cambridge, UK, Sept.2011. Övrigt
2012 och äldre Björkhem G. National Registry of Pediatric Cardiology, Pedatric Cardiac Surgery and GUCH patients. Abstract. XL Nordic Pediatric Cardiology Meeting, Reykjavik, Sept. 2010. Övrigt
2012 och äldre Moberg K, Thilén U, Holm J. Cardiovascular events in Marfan syndrome . Follow -up and treatment in 152 patients. Scand Cardiovasc J 2008;56 (supplement): 67. X:e Svenska Kardiovaskulära vårmötet, Malmö, Sverige 08 04 23-25. Övrigt
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