Publikationer från SPAHR
SPAHR används aktivt för forskning inom PAH och CTEPH och har lett till ett antal publikationer i såväl nationella som internationella tidskrifter.
- Bouzina H, Rådegran G, Butler O, Hesselstrand R, Hjalmarsson C, Holl K, Jansson K, Klok R, Söderberg S, Kjellström B. Longitudinal changes in risk status in relation to treatment approaches, age and comorbidity burden in pulmonary arterial hypertension. ESC Heart Failure. Accepted
- Kjellström B, Sandqvist A, Hjalmarsson C, Nisell M, Näsman P, Ivarsson B. Adherence to disease-specific drug treatment among patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension. Eur Resp J Open Research. Accepted
- Sandqvist A, Kylhammar D, Bartfay SE, Hesselstrand R, Hjalmarsson C, Kavianipour M, Nisell M, Rådegran G, Wikström G, Kjellström B, Söderberg S. Risk stratification in chronic thromboembolic pulmonary hypertension predicts survival. Scand Cardiovasc J. 2020:1-7.
- Hjalmarsson C, Butler O, Hesselstrand R, Holl K, Jansson K, Klok R, Rådegran G, Söderberg S, Kjellström B. Poor outcome of patients with pulmonary arterial hypertension with insufficient response to phosphodiesterase-5 inhibitors alone or in combination with other specific therapy: a registry-based study. Pulm Circ. 2020;10:2045894020958557.
- Kjellström B, Ryftenius H, LandenfeltGestre L, Ivarsson B. Outpatient specialist clinics for pulmonary arterial hypertension and chronic thromboembolic pulmonary hypertension in the Nordic countries. Pulm Circ 2020;10.1177/2045894019897499
- Kjellström B, Nisell M, Kylhammar D, Bartfay SE, Ivarsson B, Rådegran G, Hjalmarsson C. Sex-specific differences and survival in patients with idiopathic pulmonary arterial hypertension 2008-2016. ERJ Open Res. 2019 Aug 12;5:00075-2019.
- Ivarsson B, Hesselstrand R, Rådegran G, Kjellström B. Patientens perspektiv på att leva med diagnosen PAH eller CTEPH i Sverige. Läkartidningen. 2019;116
- Kjellström B, Ivarsson B. Information, socialt stöd, copingförmåga samt följsamhet till läkemedel hos patienter med PAH eller CTEPH. Best Practice Diabetes/Hjärtkärlsjukdomar 2018
- Kjellström B, Hjalmarsson C, Kylhammar D, Rådegran G. Pulmonary arterial hypertension: assessing risk to improve prognosis. Expert Rev Cardiovasc Ther. 2018. doi: 10.1080/14779072.2019.1548278
- Waldréus N, Ivarsson B, Jaarsma T, Strömberg A, Årestedt K, Kjellström B. Development and psychometric properties of a questionnaire for measuring patient’s experiences of health-care in pulmonary arterial hypertension outpatient clinics. Heart Lung Circ. 2018 doi: 10.1016/j.hlc.2018.07.011
- Ivarsson B, Hesselstrand R, Rådegran G, Kjellström B. Health-related quality of life, treatment adherence and psychosocial support in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.. Chron Respir Dis. 2018 doi: 10.1177/1479972318787906
- Hjalmarsson C, Rådegran G, Kylhammar D, Rundqvist B, Multing J, Nisell M, Kjellström B. Impact of age and comorbidity on outcome in idiopathic pulmonary arterial hypertension. Eur Respir J. 2018 doi: 10.1183/13993003.02310-2017
- Ivarsson B, Hesselstrand R, Rådegran G, Kjellström B. Adherence and medication belief in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension- A nationwide population-based cohort survey. Clin Respir J. 2018 doi: 10.1111/crj.12770.
- Ivarsson B, Hesselstrand R, Rådegran G, Kjellström B. Coping, social support and information in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary: A 2-year retrospective cohort study. SAGE Open Med. 2018 doi: 10.1177/2050312117749159.
- Kylhammar D, Kjellström B, Hjalmarsson C, Jansson K, Nisell M, Söderberg S, Wikström G, Rådegran G. A comprehensive risk stratification at early follow-up determines prognosis in pulmonary arterial hypertension. Eur Heart J. 2017. doi: 10.1093/eurheartj/ehx257.
- Ivarsson B, Rådegran G, Hesselstrand R, Kjellström B. Information, social support and coping in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension-A nationwide population-based study. Patient Educ Couns. 2017;100:936-942
- Rådegran G, Kjellström B, Ekmehag B, Larsen F, Rundqvist B, Blomquist SB, Gustafsson C, Hesselstrand R, Karlsson M, Kornhall B, Nisell M, Persson L, Ryftenius H, Selin M, Ullman B, Wall K, Wikström G, Willehadson M, Jansson K, Stefan Söderberg S. Characteristics and survival of adult Swedish PAH and CTEPH patients 2000-2014. Scand Cardiovasc J. 2016;50:243-50
- Naumburg E, Axelsson I, Huber D, Söderström L. Some neonatal risk factors for adult pulmonary arterial hypertension remain unknown. Acta Paediatr. 2015;104:1104-8
- Jansson K, Kjellström B, Söderberg S, Larsen F, Rådegran G. Pulmonell Arteriell Hypertension - förbättrad men fortfarande allvarlig prognos trots stora framsteg. Läkartidningen. 2015;112
- Ivarsson B, Ekmehag B, Hesselstrand R, Rådegran G, Sjöberg T. Perceptions of received information, social support, and coping in patients with pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension. Clin Med Insights Circ Respir Pulm Med. 2014;8:21-8
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Clara Hjalmarsson, Tanvee Thakur, Tracey Weiss, Erik Björklund, Joanna-Maria Papageorgiou, Göran Rådegran, Stefan Söderberg, Håkan Wåhlander, Dominik Lautsch, Barbro KjellströmRisk assessment models and survival in pulmonary arterial hypertension: a SPAHR analysisJournal of Heart and Lung Transplantation. S1053-2498(24)01929-6 DOI:https://doi.org/10.1016/j.healun.2024.10.029
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Clara Hjalmarsson, Barbro Kjellström, Kjell Jansson, Magnus Nisell, David Kylhammar , Mohammad Kavianipour , Göran Rådegran , Stefan Söderberg , Gerhard Wikström, Dirk M. Wuttge, Roger Hesselstrand Early risk prediction in idiopathic versus connective tissue disease-associated pulmonary arterial hypertension: call for a refined assessmentERJ Open Res 2021; 7: 00854-2020 https://doi.org/10.1183/23120541.00854-2020
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