The Swedish Cohort Consortium
Cohorts.se – The Swedish Cohort Consortium – is a national technical and collaborative infrastructure, enabling greater use of Swedish cohorts for world-leading research.
The coordination of all Swedish prospective population-based cohorts in a common infrastructure allows for more precise research findings and the facilitation of research on rare diseases and exposures, leading to better utilization of study participants’ data, better return of funders’ investments, and a higher benefit to patients and populations.
Cohorts.se supports some aspects of single cohort operations and all aspects of collaborations between cohorts. Important components of the infrastructure involve data curation and management, cataloguing of variables, presentation of and access to data, harmonization of variables for research projects, linkage of cohorts and official registries using a novel technique, and statistical analysis including a new method for distributed data analysis eliminating the need to send data between cohorts.
In addition, Cohorts.se includes collaborative interfaces for researchers, data managers, statisticians, and publication managers, including national meetings and educational efforts. We envision that this will drive development of epidemiological research methods, resulting in innovation and identification of new prediction instruments as well as targets for therapy – ultimately improving health worldwide.